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Learning More and
Taking Action

Understanding and Managing Your Risk

For Cancer Survivors

Tell Us Your Story

Organizations

Background Information

Glossary

“A particular disorder might be described as 'running in a family' if more than one person in the family has the condition. Some disorders that affect multiple family members are caused by gene mutations, which can be inherited (passed down from parent to child). Other conditions that appear to run in families are not caused by mutations in single genes. Instead, environmental factors such as dietary habits or a combination of genetic and environmental factors are responsible.”

— Genetics Home Reference,
The National Library of Medicine, National Institutes of Health

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Organizations

Be Ready To Get the Support You Need

If you're looking for support, you'll find some helpful organizations below that specialize in:

Hereditary Breast and Ovarian Cancer (HBOC)
Breast Cancer
Ovarian Cancer
Cancer in General
Women's Health
Your Organization

Hereditary Breast and Ovarian Cancer (HBOC)

Center for Hereditary Risk
InheritedRisk.com
(You are here.) InheritedRisk.com: Breast and Ovarian Cancer is a place for people who want to learn more about HBOC—Hereditary Breast and Ovarian Cancer syndrome—and get their questions answered.

Facing Our Risk of Cancer Empowered (FORCE)
www.facingourrisk.org
(954) 255-8732
FORCE was created for women whose family history and genetic status put them at increased risk for breast and ovarian cancer, as well as entire families dealing with BRCA mutations. Its mission is to improve the lives of individuals and families affected by hereditary breast and ovarian cancer.

Genetic Alliance
www.geneticalliance.org
(202) 966-5557
Genetic Alliance is a coalition of more than 600 advocacy organizations serving millions of individuals and families living with genetic conditions.

NCI Cancer Genetics Services Directory
www.cancer.gov/search/genetics_services/
The National Cancer Institute Cancer Genetics Services Directory lists professionals who provide services related to cancer genetics, including cancer risk assessment, genetic counseling, and genetic susceptibility testing.

Breast Cancer

Living Beyond Breast Cancer
www.lbbc.org
(888) 753-5222
The mission of LBBC is to empower all women affected by breast cancer to live as long as possible with the best quality of life. LBBC also has a Young Survivors Group for breast cancer survivors diagnosed at age 45 or younger.

Men Against Breast Cancer
www.menagainstbreastcancer.org
(866) 547-MABC (6222)
Men Against Breast Cancer unites men who have breast cancer in their families. This organization provides support services to educate and empower men to be effective caregivers of female loved ones with breast cancer, and gives men greater involvement in the fight against breast cancer.

National Breast Cancer Coalition
www.natlbcc.org
(202) 296-7477
The largest breast cancer advocacy group in the U.S., the National Breast Cancer Coalition has hundreds of member organizations and tens of thousands of individual members.

The National Women's Health Information Center
www.4woman.gov/breastcancer/
(800) 994-9662
Access to US government resources and publications on breast cancer.

Sharsheret
www.sharsheret.org
(866) 474-2774
Sharsheret—Hebrew for "chain"—is dedicated to the unique concerns of young Jewish women who are facing breast cancer.

Sisters Network Inc.
www.sistersnetworkinc.org
(866) 781-1808
Sisters Network Inc. is committed to shedding light on the devastating impact that breast cancer has in the African American community.

Susan G. Komen for the Cure
www.komen.org
(800) 462-9273
The mission of Susan G. Komen for the Cure is to save lives and end breast cancer forever by empowering people, ensuring quality care for all, and energizing science to find the cures.

Young Survival Coalition
www.youngsurvival.org
(877) YSC-1011
YSC is a group of breast cancer survivors and supporters committed to the unique issues and concerns related to breast cancer in young women.

Y-ME National Breast Cancer Organization
www.y-me.org
(800) 221-2141
The mission of Y-ME is to ensure, through information, empowerment, and peer support, that no one faces breast cancer alone.

Ovarian Cancer

National Ovarian Cancer Coalition
www.ovarian.org
(888) OVARIAN
The National Ovarian Cancer Coalition is dedicated to raising awareness about ovarian cancer and providing education to women with ovarian cancer and their families, the general population, and the medical community.

Ovarian Cancer National Alliance
www.ovariancancer.org
(202) 331-1332
The Ovarian Cancer National Alliance (OCNA) seeks "to conquer ovarian cancer by uniting individuals and organizations in a national movement."

Gilda Radner Familial Ovarian Cancer Registry
www.ovariancancer.com
(800) OVARIAN
In addition to ovarian cancer research, the Gilda Radner Familial Ovarian Cancer Registry provides an international registry of families with two or more relatives with ovarian cancer. The Registry offers an 800-OVARIAN Hotline answered by a trained cancer information specialist, a newsletter, and informative consumer publications.

Cancer in General

American Cancer Society
www.cancer.org
(800) ACS-2345
This national community-based volunteer organization provides information about cancer and treatment options, as well as local programs and services, and is dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service.

National Cancer Institute
www.cancer.gov
(800) 4-CANCER
(800) 422-6237
The National Cancer Institute is the US government's principal agency for cancer research and training. The NCI provides a wealth of cancer information and resources.

National Coalition for Cancer Survivorship
www.canceradvocacy.org
(877) 622.7937
The National Coalition for Cancer Survivorship promotes high-quality cancer care for all Americans. To order the Cancer Survival Toolbox^® or NCCS publications, call 877.NCCS.YES (877.622.7937).

Women's Health

The National Women's Health Information Center
www.4woman.gov
(800) 944-9662
"The federal government source for women's health information. The most reliable and current information resource on women's health today."

Your Organization

Should your organization be listed here? If so, please e-mail a link to your organization's Web site and a description of your organization to webmaster@myriad.com for evaluation. If appropriate, we'll include it in our next update.

An estimated 10% of all ovarian cancers are hereditary.

An estimated 7% of all breast cancers are hereditary.